A systematic review of quality of life of adults on the autism spectrum

Michael Ayres, Jeremy Parr, Jacqui Rodgers, Leah Avery, Darren Flynn

Research output: Contribution to journalReview article

112 Downloads (Pure)

Abstract

Autism spectrum disorder is associated with co-existing conditions that may adversely affect an individual's quality of life. No systematic review of quality of life of adults on the autism spectrum has been conducted. Our objectives were as follows: (1) review the evidence about quality of life for adults on the autism spectrum; (2) critically appraise current practice in assessing quality of life of adults on the autism spectrum. We searched bibliographic databases and other literature to identify studies using a direct measure of quality of life of adults on the autism spectrum. Hand searching of reference lists, citation searching and personal communication with field experts were also undertaken. In total, 827 studies were identified; 14 were included. Only one quality of life measure designed for use with the general autism spectrum population was identified. Quality of life of adults on the autism spectrum is lower than that of typically developing adults, when measured with tools designed for the general population. There are no comprehensive autism spectrum disorder-specific quality of life measurement tools validated for use with representative samples of adults on the autism spectrum. There is a pressing need to develop robust measures of quality of life of autistic adults.
Original languageEnglish
Pages (from-to)774-783
Number of pages10
JournalAutism
Volume22
Issue number7
Early online date12 Aug 2017
DOIs
Publication statusPublished - 1 Oct 2018

Fingerprint

Autistic Disorder
Quality of Life
Bibliographic Databases
Population
Communication

Cite this

Ayres, Michael ; Parr, Jeremy ; Rodgers, Jacqui ; Avery, Leah ; Flynn, Darren. / A systematic review of quality of life of adults on the autism spectrum. In: Autism. 2018 ; Vol. 22, No. 7. pp. 774-783.
@article{459827d08bd24eccafefd5a2562d6639,
title = "A systematic review of quality of life of adults on the autism spectrum",
abstract = "Autism spectrum disorder is associated with co-existing conditions that may adversely affect an individual's quality of life. No systematic review of quality of life of adults on the autism spectrum has been conducted. Our objectives were as follows: (1) review the evidence about quality of life for adults on the autism spectrum; (2) critically appraise current practice in assessing quality of life of adults on the autism spectrum. We searched bibliographic databases and other literature to identify studies using a direct measure of quality of life of adults on the autism spectrum. Hand searching of reference lists, citation searching and personal communication with field experts were also undertaken. In total, 827 studies were identified; 14 were included. Only one quality of life measure designed for use with the general autism spectrum population was identified. Quality of life of adults on the autism spectrum is lower than that of typically developing adults, when measured with tools designed for the general population. There are no comprehensive autism spectrum disorder-specific quality of life measurement tools validated for use with representative samples of adults on the autism spectrum. There is a pressing need to develop robust measures of quality of life of autistic adults.",
author = "Michael Ayres and Jeremy Parr and Jacqui Rodgers and Leah Avery and Darren Flynn",
year = "2018",
month = "10",
day = "1",
doi = "10.1177/1362361317714988",
language = "English",
volume = "22",
pages = "774--783",
journal = "Autism",
issn = "1362-3613",
publisher = "SAGE Publications Ltd",
number = "7",

}

A systematic review of quality of life of adults on the autism spectrum. / Ayres, Michael; Parr, Jeremy; Rodgers, Jacqui; Avery, Leah; Flynn, Darren.

In: Autism, Vol. 22, No. 7, 01.10.2018, p. 774-783.

Research output: Contribution to journalReview article

TY - JOUR

T1 - A systematic review of quality of life of adults on the autism spectrum

AU - Ayres, Michael

AU - Parr, Jeremy

AU - Rodgers, Jacqui

AU - Avery, Leah

AU - Flynn, Darren

PY - 2018/10/1

Y1 - 2018/10/1

N2 - Autism spectrum disorder is associated with co-existing conditions that may adversely affect an individual's quality of life. No systematic review of quality of life of adults on the autism spectrum has been conducted. Our objectives were as follows: (1) review the evidence about quality of life for adults on the autism spectrum; (2) critically appraise current practice in assessing quality of life of adults on the autism spectrum. We searched bibliographic databases and other literature to identify studies using a direct measure of quality of life of adults on the autism spectrum. Hand searching of reference lists, citation searching and personal communication with field experts were also undertaken. In total, 827 studies were identified; 14 were included. Only one quality of life measure designed for use with the general autism spectrum population was identified. Quality of life of adults on the autism spectrum is lower than that of typically developing adults, when measured with tools designed for the general population. There are no comprehensive autism spectrum disorder-specific quality of life measurement tools validated for use with representative samples of adults on the autism spectrum. There is a pressing need to develop robust measures of quality of life of autistic adults.

AB - Autism spectrum disorder is associated with co-existing conditions that may adversely affect an individual's quality of life. No systematic review of quality of life of adults on the autism spectrum has been conducted. Our objectives were as follows: (1) review the evidence about quality of life for adults on the autism spectrum; (2) critically appraise current practice in assessing quality of life of adults on the autism spectrum. We searched bibliographic databases and other literature to identify studies using a direct measure of quality of life of adults on the autism spectrum. Hand searching of reference lists, citation searching and personal communication with field experts were also undertaken. In total, 827 studies were identified; 14 were included. Only one quality of life measure designed for use with the general autism spectrum population was identified. Quality of life of adults on the autism spectrum is lower than that of typically developing adults, when measured with tools designed for the general population. There are no comprehensive autism spectrum disorder-specific quality of life measurement tools validated for use with representative samples of adults on the autism spectrum. There is a pressing need to develop robust measures of quality of life of autistic adults.

U2 - 10.1177/1362361317714988

DO - 10.1177/1362361317714988

M3 - Review article

VL - 22

SP - 774

EP - 783

JO - Autism

JF - Autism

SN - 1362-3613

IS - 7

ER -