A systematic review of quality of life of adults on the autism spectrum

Michael Ayres, Jeremy Parr, Jacqui Rodgers, Leah Avery, Darren Flynn

    Research output: Contribution to journalReview article

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    Abstract

    Autism spectrum disorder is associated with co-existing conditions that may adversely affect an individual's quality of life. No systematic review of quality of life of adults on the autism spectrum has been conducted. Our objectives were as follows: (1) review the evidence about quality of life for adults on the autism spectrum; (2) critically appraise current practice in assessing quality of life of adults on the autism spectrum. We searched bibliographic databases and other literature to identify studies using a direct measure of quality of life of adults on the autism spectrum. Hand searching of reference lists, citation searching and personal communication with field experts were also undertaken. In total, 827 studies were identified; 14 were included. Only one quality of life measure designed for use with the general autism spectrum population was identified. Quality of life of adults on the autism spectrum is lower than that of typically developing adults, when measured with tools designed for the general population. There are no comprehensive autism spectrum disorder-specific quality of life measurement tools validated for use with representative samples of adults on the autism spectrum. There is a pressing need to develop robust measures of quality of life of autistic adults.
    Original languageEnglish
    Pages (from-to)774-783
    Number of pages10
    JournalAutism
    Volume22
    Issue number7
    Early online date12 Aug 2017
    DOIs
    Publication statusPublished - 1 Oct 2018

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