Psychosocial interventions for people with intellectual disabilities and dementia: A systematic review

Ash Summers, Steven MacDonald

Research output: Contribution to journalReview article

Abstract

Background: People with intellectual disability experience a higher prevalence of dementia, at an earlier age, than the general population. The aim of this review was to establish the psychological interventions and outcomes for individuals with intellectual disability and dementia.

Methods: A search of eight electronic databases and reference lists of all included articles was conducted using PRISMA guidelines. Data were synthesised using an integrative method.

Results: Initial searching produced 2331 papers. Twenty-one studies met the inclusion criteria. Interventions were deductively categorised into behavioural, systemic and therapeutic. All studies reported positive findings for individuals and for the systems which support them, but limited by methodological issues and neglect of the direct experience and impact on individuals themselves.

Conclusions: The findings are discussed in relation to the wider literature and evidence-base. Future research should aim to adopt methodologically robust designs that are inclusive of the individual experience of people with intellectual disability.
Original languageEnglish
JournalJournal of Applied Research in Intellectual Disabilities
Publication statusAccepted/In press - 12 Feb 2020

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psychosocial intervention
Disabled Persons
dementia
Intellectual Disability
Dementia
disability
psychological intervention
experience
Databases
Guidelines
Psychology
neglect
inclusion
electronics
Population
evidence
Therapeutics

Cite this

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title = "Psychosocial interventions for people with intellectual disabilities and dementia: A systematic review",
abstract = "Background: People with intellectual disability experience a higher prevalence of dementia, at an earlier age, than the general population. The aim of this review was to establish the psychological interventions and outcomes for individuals with intellectual disability and dementia.Methods: A search of eight electronic databases and reference lists of all included articles was conducted using PRISMA guidelines. Data were synthesised using an integrative method. Results: Initial searching produced 2331 papers. Twenty-one studies met the inclusion criteria. Interventions were deductively categorised into behavioural, systemic and therapeutic. All studies reported positive findings for individuals and for the systems which support them, but limited by methodological issues and neglect of the direct experience and impact on individuals themselves. Conclusions: The findings are discussed in relation to the wider literature and evidence-base. Future research should aim to adopt methodologically robust designs that are inclusive of the individual experience of people with intellectual disability.",
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N2 - Background: People with intellectual disability experience a higher prevalence of dementia, at an earlier age, than the general population. The aim of this review was to establish the psychological interventions and outcomes for individuals with intellectual disability and dementia.Methods: A search of eight electronic databases and reference lists of all included articles was conducted using PRISMA guidelines. Data were synthesised using an integrative method. Results: Initial searching produced 2331 papers. Twenty-one studies met the inclusion criteria. Interventions were deductively categorised into behavioural, systemic and therapeutic. All studies reported positive findings for individuals and for the systems which support them, but limited by methodological issues and neglect of the direct experience and impact on individuals themselves. Conclusions: The findings are discussed in relation to the wider literature and evidence-base. Future research should aim to adopt methodologically robust designs that are inclusive of the individual experience of people with intellectual disability.

AB - Background: People with intellectual disability experience a higher prevalence of dementia, at an earlier age, than the general population. The aim of this review was to establish the psychological interventions and outcomes for individuals with intellectual disability and dementia.Methods: A search of eight electronic databases and reference lists of all included articles was conducted using PRISMA guidelines. Data were synthesised using an integrative method. Results: Initial searching produced 2331 papers. Twenty-one studies met the inclusion criteria. Interventions were deductively categorised into behavioural, systemic and therapeutic. All studies reported positive findings for individuals and for the systems which support them, but limited by methodological issues and neglect of the direct experience and impact on individuals themselves. Conclusions: The findings are discussed in relation to the wider literature and evidence-base. Future research should aim to adopt methodologically robust designs that are inclusive of the individual experience of people with intellectual disability.

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JF - Journal of Applied Research in Intellectual Disabilities

SN - 1360-2322

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