The Psychological Effects of Guillain-Barré Syndrome: A Grounded Theory Study

Guillain-Barré Syndrome is a rare neurological condition. Research has increased our understanding of the aetiology, prognosis, and effective medical treatment of the illness. There is a lack of understanding regarding the psychological effects and what could help patients. This study aimed to begin to address this using constructivist grounded theory. Eleven interviews were conducted with participants who had received a diagnosis of Guillain-Barré Syndrome in the preceding four years. The model that emerged identified two key processes: ‘Loss, determination and adjustment’ and ‘The unknown’. ‘Receiving support’, ‘Obtaining knowledge’, and ‘Experiencing hope’ assist in navigating these psychological effects. The findings emphasise the all-encompassing effects of Guillain-Barré Syndrome, illustrating the need for rehabilitation professionals to alleviate uncertainty and foster practices that could facilitate patients’ navigation through the illness. Recommendations for further research are provided.